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Health and Wellness I Ride Bikes The Cancer Journey

Cycling for a Cause: Fundraising and Friendship in the Fight Against Cancer

Four years in and I am still living with No Evidence of Disease (NED) and I was right, from the moment I received my head & neck cancer diagnosis, I knew cancer was going to change my life.

I was convinced that cancer would make me tougher and maybe it did.

I was convinced that if I made it through my surgery and treatments that I would try to make a difference in others’ lives. Hopefully I have.

I was convinced that I was going to use my cancer journey to change myself and write a different script for the second half of my life. (I was fifty at the time and am shooting for fifty more years.) I’m still working on this and suspect I will be for some time.

What I didn’t suspect was that I would get the opportunity to engage with so many new and incredible people. Had I not gotten cancer I may never have crossed paths with these individuals. From health care providers to strangers donating to my fund raisers, they’ve all affected me in so many positive ways.

As the cycling season winds down, the trees begin to offer up their riots of color and as I roll across the trails on my bike with fallen foliage crunching under my tires, I try to reconnect with why I am here and often come back to it being about the people.

The rest of this post is to share with you a bit more about one of those incredible people, Kam Krull aka Kam-Chow.

Kam’s dad, Brian, has been riding for Team First Descents and raising money for young adults battling cancer for five years so you can imagine this whole fund raising thing took on a new meaning when Kam was diagnosed with cancer.

At this point I think it’s best to hear from Kam herself and the incredible journey she took to get to Leadville this year. So finish up this blog by taking a gander at the video below.

And even though the fund raising is done for this year’s Leadville 100 MTB for Frist Descents, keep an eye out for next year ’cause my hope is that I get to line up again not just with Brain but Kam, too.

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Health and Wellness The Cancer Journey

Fuck this Pity Party

Somedays I resent being a #cancersurvivor, a #cancerthriver, and #cancerwarrior.

The suggestion that I did something extraordinary rubs me the wrong way. Despite what the media, Instagram and the American Cancer Society want you to believe I am no different than anyone else trying to get by in this world.

I’m not above using cancer hashtags to promote my Instagram account and I see the hypocrisy in my anger, but I’m still pissed.

I did not draw my trusty sword or put on combat gear to fight cancer. I did nothing more than what anyone of you would do when sick. I listened to my doctors, took my medicine and got plenty of rest. Cancer is like having the flu but instead of chicken noodle soup, it’s lots of radiation and the hope you can actually keep the soup down.

I got lucky.

I got lucky that my cancer was discovered early in Stage II. I got lucky that the treatment methods for head and neck cancer has advanced by leaps in bounds over the last ten years.

I was fortunate that I had a job that afford me health insurance and the time off to seek treatment and concentrate on my health and recovery.

Why resent such a noble titles as survivor, thriver and warrior?

Because when you attach cancer to the front of each it evokes pity and sadness from your audience.

I don’t need your pity. I need you to get angry, scared and ask what can I do so I and my loved ones don’t get cancer.

I need you to be the warrior.

I need you to stand up and say this is enough.

I need you to make sure your loved ones get their HPV vaccines.

I need you to stop smoking.

I need you to exercise more and eat more fresh fruits and vegetables and cut down on that crap that is passed to you through your car window that you’ve been led to believe constitutes a meal.

I need you to wake the fuck up.

I need you to turn out the lights as you leave the pity part and make sure the door doesn’t hit you in the ass on the way out.

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https://www.cancer.org

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The Cancer Journey

An open letter to my wife, family and friends

I start this letter with hesitation. I know that I can be preachy, a know it all and just a general pain in the ass. I can read a book or listen to a podcast and all of sudden I’m expert. In fact I’m pretty sure I could preform open heart surgery if the book had step my step illustrations.

Knowing this about me, know this letter comes from a place of love and concern. Here goes…

First things first. I don’t want you to get cancer. I’m sure you don’t want it either. There are some things that no one wishes for.

Statistically about a third of the population will get cancer. The lucky ones will get it very late in their life and it will have no or very little effect on the quality of their life. I want you to be in the two-thirds group from start to finish.

Here’s a another truth about me. I am a selfish individual. Going through my own cancer treatment has sucked. I’ve been sliced opened, biopsied and radiated until I glowed nuclear green. At the end of the day that’s all temporary and I think I did a pretty good job of sucking it up and muscling through it. They (not sure who they is but they are credible) say that our bodies can’t remember physical pain. I would agreed with that as I can’t actually recall the pain and discomfort I went through.

What I do remember is the pain and sadness on your face when I told you I had cancer.

I remember the look of hopelessness and concern on your face when I came out from under the anesthesia after five hours of surgery.

I remember how you would quickly ask what was wrong when I shifted to get comfortable on the hospital bed or at home on the sofa as I let out a groan.

I remember the guilty look on your face as we ate dinner and you were enjoying your food while I had to use lidocaine to numb my throat just so I could swallow mushy bland foods. Strangely I still love and eat oatmeal for breakfast almost every day.

I don’t want to to be in the position that you have been in for the last six months. I’m not sure I could deomonstrate the type of strength you have shown.

So help me and do a couple of things to take care of yourself and put the odds in your favor that you want get diagnosed with cancer.

Here comes the preachy part. Can I get an amen!

  1. Don’t use a tobacco. That’s a no brainer. We’ve heard it all our lives and the tobacco industry finally came clean, that yes maybe they had been suppressing data for years that using tobacco was bad for you. So don’t start and if you already do use tobacco, stop. And no vape pens are not a healthy alternative. Plus is makes your look like a tool sucking on that glowing electric phallic device.
  2. Exercise. Get outside– walk, run, hike, ride a bike or skip across a meadow. Just move. Find something you enjoy doing. Do it a lot and sometimes do it hard. Your body will thank you for it.
  3. Eat well. Eat more fruits and vegetables than you do meat. Avoid processed meats. Question foods that say ‘fortified’ Why would a company remove all the nutrients just to add them back in? Drink lots of water. Avoid foods with added sugar and artificial sweetners.
  4. Maintain a health weight. See numbers 2 and 3 above to help you with this. There is no magic diet that will help you loose weight and keep it off. Strive for balance and consistentcy
  5. Limit alcohol. Yeah this one kills me too but the data supports it. Less alcohol in your life lessens your chances of having cancer in your life. Following this will help with number 5.
  6. Ensure your kids get immunized. My particular neck/oral cancer caused by human papillomavirus (HPV) also causes cervical cancer. A simple vaccine can greatly reduce your or your child’s risk. While you’re at it practice safe sex and talk to your children about how to practice safe sex. HPV, of which there are over a hundred types, is the most common sexual transmitted disease in the United States . Between the ages of 11-12 is the best time for the vaccine to be administered but can be started as early as age 9 and adminstered up until age 26.
  7. Know your family medical history and follow your doctor’s recommendation for screenings
  8. Avoid long bouts of unprotected time in the sun. Wear sunscreen especially on your face, neck and ears. Don’t ignore that weird growth that seemed to show up overnight on your neck. Get it looked at by a doctor.

So please, love yourself as much as I love you. Take care of yourself. I need you in my life as long as possible.

With heart,

Jay

P.S. Bonus points. Share this with someone you love.

No I am not a doctor but at the same time I did not make up the above advice. No #fakenews was used to write this blog. I write from the heart but the science is real.

There are a lot of great credible sources out there that I have used to educate myself on my cancer journey. Below is a short list.

https://www.mayoclinic.org

https://www.cdc.gov

https://www.cancer.org